E is for Epilepsy

My son was diagnosed with epilepsy last October. It took a lot of fighting and arguing with doctors and insurance reps to get him to a neurologist. The doc he saw in the ER and at the ER follow up wouldn't give us a referral to a neuro because she didn't believe he had a seizure. I had to find a new doctor to get a referral, and then after I finally got the referral my insurance wouldn't pay for the visit and I had to pay out of pocket.
Epilepsy is scary. Watching my son have a seizure I was completely powerless to help him and afterwards his skin was an ashy grey color. He looked dead. After having had 10 seizures in three months, he's been seizure free for almost a year now. I still worry, though. What if he has another bad seizure? Will the ER docs be less dismissive now that he's been diagnosed? I don't know, and I hope I never have to find out.